Setbacks

So went to the kids pediatrician today for Mason's 15 month old checkup and asked her about the blood work order. And finally got the real deal, come to find out our insurance (Blue Care Network) is giving her a difficult time ordering blood work from Genova (the best), they wanted her to use one of their labs then have a nutritionist  sit down and talk to her to discuss the results (eyes slanted) . I told her I'd rather wait until hubby's fiscal year ended in September, we'd switch to regular Blue Cross that way we wouldn't need any referrals or anything. So we wait to start on the protocol, in the mean time we continue with the diet and supplements that we are doing. Will be starting our JP back up again as the kids really need it.

Will continue to update during the summer months.

Until Next Time,
Blessing & Recovery
The Fuller's

Life Lessons

Today I took Jai Lynn to the movies to see a special screening of Madagascar 3.  Originally we were supposed to take some of her friends with us so that I could work on some social skills but some things didn't work out this time so we weren't able to use this opportunity for social experience work but I was able to use this chance to teach her about choices and consequences.  While at the movies I told Jai Lynn that we were going to McDonald's after the movies, because we had just had breakfast I would not be purchasing popcorn and soda. She begun to whimper and whine (something we're working on) stating she wanted popcorn, I told her "We're going to McDonald's". She continued to whimper, I then made a decision do I allow her to whimper and allow attention to be drawn to both of us or give her the popcorn? We couldn't just go home because we had bought other's with us so just leaving was not an option and I was not going to sit in the car to listen to her whine or sit in the lobby of the movie theater listening to her whine. So I made a decision:
"Jai Lynn if you get popcorn and soda now you will not get McDonald's, so do you want popcorn now or McDonald's later"
"I want popcorn" she said
"Are you sure" I asked "This means that you will not get McDonald's if you get popcorn, do you want popcorn now or wait for McDonald's"
"I want popcorn, I don't want McDonald's"

Now I knew what was going to happen, she was going to eat the popcorn and when we got to McDonald's after the movies she was going to make her request, but I had to begin teaching her the lessons of choices and consequences.

So, off I went to purchase her popcorn and soda. Once the movie was over I drove to McDonald's. The first thing out of her mouth was "I want McDonald's" I stated "no you don't get any you chose popcorn" And the whimpering, whining, self talk, crying, bad attitude, began.

In all of that she stated, " I wanna die" I stated "no you don't, you're just upset and it will be okay there is food at home for you to eat", then at some point she stated that she was stupid, " stated you're not stupid you just made a bad choice and that's okay, we all make bad choices and now you know"  After that she was pretty much okay.  When we got home she grabbed a snack, went into the basement turned on Netflix and begun giggling watching her show.  I'm not even sure if she was hungry (silently laughing) but if she just wanted what everyone else had.

But, today she learned (again) about making choices, this is a lesson that we have done before and she learned in that instance but new circumstances often cause a girl to have to think again.  So this was a wonderful albeit uncomfortable lesson for her.

Until Next Time,
Blessings & Recovery
The Fuller's

May, May the end of May

This month has been filled with many ups and downs as all my months are.  We started out the month strong with less seizures, more speech, less meltdowns, we ended it with still a lot of up but it seems as if we are back on the seizure yo-yo.  We are not really doing any supplements we are doing:
keifer
aloe vera juice

That's it, we have really toned down STILL waiting on this pediatrician to order this darn blood work. But she keeps putting it off saying she needs to read the book more (for those not knowing what I'm talking about check out the blog posting Updates) information on what tests Dr. Goldberg is talking about to make sure that the tests she runs don't overlap what he does.  For those that know me know that I am a VERY detailed mom, I didn't just give her the book I gave her:

• The book 
• DVD's of video of Dr. Goldberg that I downloaded off the internet
• The questionnaire from page 98-101 for each child
• The lab workup list from page 102
• medical records

So you see people I just didn't hand her a book and tell her what to do.  Now in saying that I do totally understand her wanting to do everything right and us not having to re do any tests or taking tests that are unnecessary. But, my patience is running thin because now I hopefully have a protocol that could be life changing for us all but we can't start it because the doctor is not doing her part (in my eyes) It's been a month since I introduced this information to her and still we wait.  I don't know if she understands what is riding on this, maybe she does and I'm just.....for lack of a better word impatient. I just want my kids to be better.

So now we are back to multiple seizures but we have still have the increased speech and a little more focus, depending. Jai Lynn has been doing very well, I want to work on her socialization and math skills this summer. Found out at her last IEP that her reading skills are at grade level so we will also be reinforcing her reading this summer with the added comprehension piece.  We will be working on her writing skills and science and social studies.

So, that is where we are. Hoping to give progress updates over the course of the summer, school here in MI will be out in 12 days and I am so ready for it to be over as getting up and packing lunches is really getting on my nerves.

Until next time,
Blessings and Recovery
The Fuller's