Weekly Update 6-26-2012

We have been doing pretty well in the land of us.  The kids are really taking to their school lessons, I'm making sure that we stay consistent during the summer so that their minds can stay active and flexible.  Even if all my children were "neuro-typical" (which they will one day be) I will do the same.  I don't believe that summer is the time to stop learning.  Learning is supposed to be a continuous process.  

They also keep the same schedules year around, although there is a bit more freedom in the summer not too much.  Here's why, summer vacation in the Michigan school district that we're in is roughly 81 days.  Because of my challenges and the challenges of my children it is not worth it to me to break a schedule because of the amount of time and energy it would take for me to get them back where they need to be.  Plus, in real life you don't get a summer vacation, not even if you're a teacher because many of them have to take on summer jobs like college students to supplement. So this is also a life lesson. 

So this weekend I made a discovery that proves my consistent point even further. My oldest son has pica, he eats non-food items. Now my husband and I noticed a trend, the problem gets worse on the weekend or when he is extremely bored or has a lot of unstructured time.  So this past weekend we caught him eating quite a few non-food items mainly rubber.  This has been going on for a while, my  husband said that he noticed it getting better with the Neuro-Feedback (I just noticed the seizures) but this surge in eating non-food items could also explain many of his stomach issues. I don't know why I never thought of this piece before.  

So we have decreased tv time again (we cut off our cable television service and have Netflix and Hulu it allows us to better control what our children are watching.), we constantly make sure that he doesn't have non-food items in his mouth, and try to reinforce that we only eat food.  It's going to be a long road but we'll make it.  

School work wise he is doing pretty good, working on his focus and attention to detail. Making him write slowly and neatly is a challenge but his working on it with some resistance. We are also working on his already strong math skills, reading recall, building on reading comprehension, money and time.  He got a summer bridge book from school and his teacher Ms. Wentz was wonderful to print a lot of work with for us to help us stay on his goals.  We have also started the SAS music therapy again to hopefully help with his focus and to perhaps help his mind with that sensory piece to help out with that pica. He has also started the chore of taking out the trash. There have been no seizures over the past week, nor have their been any seizure like preludes such as, bad gas, screaming, loopiness. He is eating less gluten (we're not entirely gluten free), we have decreased computer and television time, we are doing Dr. Goldberg's eating protocol by removing things with dies, or the color red. He takes aloe vera juice, lots of probiotics (by way of keifer and acidophilus) activated charcoal and Methyl B-12 tabs.

Jai Lynn is doing great this summer, helping in the kitchen and around the house, learning how to use a dictionary and look up definitions thus learning the meaning of words.  She is working hard on math. This week I have her adding multiple digits, we are working on the parts of speech, reading recall and comprehension and money.  Ms. Wentz also gave her a great packet of work along with a Summer Bridge Book and a Testing booklet to get her used to testing since she will be entering the 6th grade this fall.    She has also begun the SAS music therapy again, I have her listen while praticing her typing skills ( think I will have her brother do the same almost like neuro-feedback)

Mason is working on counting to 10, colors and the alphabet.  We are working on coloring on paper and not on the table or anything else that will stand still.  

The all have a chore, once they get comfortable performing that chore on a regular basis I will tie money into it (the life skill of getting paid for completing a job) but for now we are having fun learning.  

Well that is it for now.

Until Next Time,

Blessings and Recovery,

The Fuller's

"Houston we have a Problem"

So the school year is over and my kiddos are home with me. On the last day of school I said to my kids A.I. aide (Autiscally Impaired), "you all must be said that Jai is leaving being she was the only girl and since girls aren't that prevalent on the spectrum who knows when you'll get another one" The answer she gave me almost made me drop to my knees. She said, "oh we're getting TWO little girls in next fall" I thought to myself WTH is going on??!!! When my daughter was diagnosed with  PDD- NOS back in 2003 hearing about a girl on the spectrum was rare to say the least. Jai has always been the only girl. Girls on the spectrum are like an anomolay.

If this doesn't prove that something more is going on other than "autism" I don't know what will do it for you. This is not text book autism that we're messing with people this is something more sinister. If the medical profession would open their eyes and see maybe more children would be functioning versus being zombies. Maybe that's what they want is a generation of zombies, kids hopped up on pharmaceutical, mind altering drugs. Maybe that's what these organizations want, they claim they are all for finding a cure but there is a cure right in their face. Several bold doctors have already paved the way, why aren't they mowing out the rest of the path? It makes one wonder, are they afraid of the money that they will lose out on if this is not truly autism (and trust me people for many of these kids it's not)? What interests me is that many of these organizations only tout speech, occupational and physical therapy as your main line of defense.

Here's my other issue how does a disorder go from affecting 1 and 10,000 to 1 and 88, damn that's a problem. This is not genetic or developmental this is viral. I used to think, wow because my kids had it and other children in my family had it that it must be genetic in some way. Now I know how untrue that is.

Hearing what I have heard has truly disturbed me, I can't be quiet or sit still. I can't wait really now because I have a feeling that everyone is waiting to see what my children do. So the summer is not a time of rest for us. I will continue to update with progress and changes.

Until Next Time,
Blessings and Recovery
The Fuller's

May, May the end of May

This month has been filled with many ups and downs as all my months are.  We started out the month strong with less seizures, more speech, less meltdowns, we ended it with still a lot of up but it seems as if we are back on the seizure yo-yo.  We are not really doing any supplements we are doing:
keifer
aloe vera juice

That's it, we have really toned down STILL waiting on this pediatrician to order this darn blood work. But she keeps putting it off saying she needs to read the book more (for those not knowing what I'm talking about check out the blog posting Updates) information on what tests Dr. Goldberg is talking about to make sure that the tests she runs don't overlap what he does.  For those that know me know that I am a VERY detailed mom, I didn't just give her the book I gave her:

• The book 
• DVD's of video of Dr. Goldberg that I downloaded off the internet
• The questionnaire from page 98-101 for each child
• The lab workup list from page 102
• medical records

So you see people I just didn't hand her a book and tell her what to do.  Now in saying that I do totally understand her wanting to do everything right and us not having to re do any tests or taking tests that are unnecessary. But, my patience is running thin because now I hopefully have a protocol that could be life changing for us all but we can't start it because the doctor is not doing her part (in my eyes) It's been a month since I introduced this information to her and still we wait.  I don't know if she understands what is riding on this, maybe she does and I'm just.....for lack of a better word impatient. I just want my kids to be better.

So now we are back to multiple seizures but we have still have the increased speech and a little more focus, depending. Jai Lynn has been doing very well, I want to work on her socialization and math skills this summer. Found out at her last IEP that her reading skills are at grade level so we will also be reinforcing her reading this summer with the added comprehension piece.  We will be working on her writing skills and science and social studies.

So, that is where we are. Hoping to give progress updates over the course of the summer, school here in MI will be out in 12 days and I am so ready for it to be over as getting up and packing lunches is really getting on my nerves.

Until next time,
Blessings and Recovery
The Fuller's

First Doctor's Visit

So, this past Monday, we met with our pediatrician to get the process started for Marcus, Jr for Dr. Goldberg's protocol.  There are a few more pieces that need to be put into place and then she will order blood work for him.

In the meantime we have started with step one of the protocol which includes eliminating allergins from the kids diets.  This includes ALL supplements.  We have been doing the diet elimination for the past month, we have eliminated supplements for the past two weeks, and the changes that we have seen have been pretty good.

Marcus, Jr's seizures are now almost non-exisisent only happening about once every other week, no more four-five seizures in a day.  Jai Lynn's cognitive abilities have increased, she seems more focused and clear.

We have also gotten more verbalization out of Marcus, Jr.  Just this weekend when I asked Jai Lynn did she want water he said "me too." He just seems to be more aware of what is going on.

So we are working on the first step of Dr. Goldberg's protocol which is changing our diet and that is working quite well so we can't wait to add the other pieces so that our children can experience a true healing from this virus.

So, I will try to post everyday as this is not only to be a help to other parents but also a log and diary for us to see where our kids have been and where they are going.

So the tidbit that I want everyone to take today is this:
"Step one is always dietary elimination (including most nonpharmaceutical supplements). The key to helping the immune system is not how many different products and things can one throw into it, but rather how many negative stimuli (primarily foods or other non-pharmaceutically pure ingested products) you can remove form the immune system, in turn allowing the immune system the first chance to start to become healthier" - "The Myth of Autism, Dr. Michael Goldberg and Elyse Goldberg, Chapter 7 page 91.

So parents this means stop giving your kids multiple vitamin therapies at once, start with one and build. Doing multiple vitamin and alternative therapies at once will not necessarily help your child. From personal experience we know this.

True story, when our son was having multiple seizures a day we where doing multiple vitamin supplements (not sure if they where pharmaceutical grade or not I'm guessing not). We where doing:
acetly l carnitine
neuro protek
Divine Child drink
NADH
Vitamin D3
and a few others those are just the ones that I can think of off the top of my head. We didn't change what he ate, let him eat whatever.  During this time Marcus, Jr had extremely bad gas, so along with his Neurofeedback therapist we discussed  modifying his diet and taking out all gluten. As soon as we removed his main trigger (it seems to be regular spaghetti stick he likes to eat them uncooked) the seizures decreased dramatically. Once we removed the supplements they decreased even more and we got more language and clarity from Marcus, Jr. Yes he still has rough days, yes he still has problems using the language in his head, yes we still have a long way to go but that small step has allowed us to make progress.

So this is our beginning. I hope to have video up this week of the kids and their interactions, tomorrow I have to take some documents to their pediatrician and talk to her about ordering the neuroSPECT scans for each child.

This is step one in our journey, please stay with us.

Blessings and Recovery,

The Fullers

Changes

Hello All,

There will be some changes that will be made to my blog. If you follow you will immediately notice that I have taken out the word Autism from my blog title. This is due to me reading (actually still reading) the book "The Myth of Autism" by Dr. Michael Goldberg.  He basically states that what our children are dealing with is not Autism but a Neuro Immune disorder, and for me and my kids what he is saying is making sense.

We will be starting Dr. Goldberg's protocol in May 2012 with both children. My blog will center around us going through this protocol with the assistance of our pediatrician and everything surrounding it.

So, thanks for the follow.

Blessings and Recovery,

The Fuller's

Been So Long

So, I have been neglecting this blog (I have 3 others), because this is the only one not linked to my main creative blog (gotta fix that). But, I'm back now. So just a quick update the kids are fine now but we have had plenty of ups and downs in between. It's been over six months since I last posted and life has been six months worth of crazy.

So let's start with Marcus, Jr, the seizures came back, we're working with his neuro feedback therapist and came up with diet. Now, those who read my blogs know I hate modifying diet, it's time consuming and costly. But, it appears that what he was eating was really messing with him. He was having really bad gas, his stomach was always rumbling and gurgling and he was constantly aggitated. Once we snatched the gluten from his diet it was almost instant, better attitude, no or very little bad gas and a happy tummy. Now, that's not all we did. We also added Aloe Vera juice and higher doses of probiotics, so far so happy. He is currently receiving neuro feedback once a week from Melissa Sklar of EEG Biofeedback of Ann Arbor, she is wonderful. She really understand the important role that diet plays in recovery. Do we still have challenging days? Yes. Do we still have a lot of ground to cover? Yes. But have we made progress? Hell yea.

Just this past Saturday, Marcus, Jr. came into our bedroom and asked to play with my cell phone (he likes Angry Birds), "phone please" he said so I gladly said "yes", he then took the phone and said "thanks" and I almost fell out of the bed! Although the thanks was a bit scripted he used it in the proper context without cues. He's been doing a lot more of that as of late, verbalizing without being told to and understanding what is said to him. That alone has made us as parents extremely happy.

Just this past Monday, his tutor even noted that he was extremely verbal and focused! Since we've changed the diet no seizures, little or no gas. More focused and a better overall disposition. Marcus, Jr. has come a long way in six months and we are so proud of him.

Now, Jai Lynn has made great strides also. She is really beginning to blossom into her own. She has been very verbal, she has really be "getting" social cues and really voicing her opinion (sometimes too much lol) and doing more age appropriate things. She is really catching up academically and learning more each day.

She is also giving us hope more hope to press on and recover our children.

My next few blog posts will be a bit more insightful and hopefully helpful to other parents.

Wishing you Blessings and Recovery,

The Fuller's

October 29, 2011

Hello all,

Sorry for the delay, I am in a statistics class that is running me through the ringer so I will fill in the posts for the missing dates so my blog is going to be a bit off. Sorry but here's what happened on the 29th of October. First lets start with our list of supplements that we have taken on this date.

• Divine Child Drink
• Acetyl L Carnitine
• Omega 369
• Cod Liver Oil
• Probiotics

Now today I was still recovering and my younger brother (my only brother) came over to check on me and visit his niece (whom he'd give his right and left arm for) and his two nephews. Now, Marcus Jr has never Never Never interacted with my brother, it's always been around him or just using Henry for what Henry could do for him but never playing with him. Well today he played with him, today he asked Uncle Henry to play with him and to play certain games! That was a huge!!! Marcus Jr actually acknowledged my brother and he played with him and that made us sooo proud.

Jai Lynn has been doing a great job also, today she has been doing a great job of finding her voice with out yelling or whispering and that is big.

Today they were both super excited because tomorrow we are going to the Zoo Boo go trick or treating for goodies. And both kids actually enjoy the Zoo Boo not just for the treats but they love the Zoo and they love the Zoo when it is all lit up for Halloween. Plus this is a great way to get the kids out in an controlled environment to get the candy they crave.

Well that is all we have for today as the kids are doing well. It seems as if we see the most gains from Marcus Jr when he has been without the NADH for at least two days. Meaning five days on and two off. It seems that in those two days that we are not giving him that one supplement whatever it was fixing just busts through.

We are very happy to share this journey with you and hope that you too embark on your own Autism Recovery journey. It doesn't have to be the same protocol that we're on but please start and don't give up hope on your child.

Wishing you Blessings and Recovery,

The Fuller's

October 12, 2011

Today the kids took the supplements that we have left (-:

• Zeolyte
• Omega 369
• Folic Acid
• Cod Liver Oil

The morning went well both kids where compliant and happy. Today was the tutoring day and both kids did very well. The tutor came over and Marcus, Jr had his session first. He sat for the entire hour! Once his hour was up she noted that he had increased focus and did a great job on his work. He completed 10 pages of work (some of it is posted in our photo gallery). Jai Lynn did a great job with her work she completed her spelling packet, she did some reading comprehension sheets, she did some math work and some other English and language arts.

When the kids got home from school I let them wind down so that they could be ready for the tutor. While Marcus Jr was playing and singing, he incorporated some of the kids in his A.I. classroom names into one of his songs. I thought that was pretty amazing.

One thing I'm not seeing a lot of this year with Marcus Jr is he used to be sort of angry whenever I would pick him up from school just overall whiny. I get it sometimes but not every time, I get some happy thoughts sometimes too.

So that was Wednesday for us. Hope this gives you some hope to push forward with any treatment that you may be considering.

Wishing you Blessings and Recovery,

The Fuller's

October 14, 2011

This morning started off very well the kids got up and took their supplements:

• NADH (am)
• Acetyl L Carinitine (am)
• Omega 369 (am)
• Folic Acid (am)

*we forgot cod liver oil this am*

• Divine Child Drink (afternoon)
• Himalayan salt (afternoon)
• Essentia Water(afternoon)
• Zeolyte (pm)

This morning while getting ready to go Marcus, Jr didn't put his socks on, so when I asked him to put his socks on he ran upstairs and as he was passing me he said "Excuse me" I was wowed because he has NEVER been that aware of what was going on around him to say excuse me.

Jai Lynn had a great day at school also, I asked her about school she said that she had a great day.

Tonight we went to the Fall Festival at the kids school and when we got there Jai Lynn saw one of her friends and said "Maggie" and gave her a big hug. Then she hugged Maggie's mom (her old Girl Scout troop leader) and said "hi Ms Peggy". Next she saw the principal and gave her an hug. After that both kids went on a train ride (without me) and both were smiling and very excited. Both had an OK time.

Dad is noticing that one on one Marcus Jr is focusing much better. And when dad went to put him to bed Marcus Jr actually hugged him no prompting! So that was a great plus for him today also.

So today was a pretty good day for us. Tomorrow will be a day for more fun (bearing the weather holds up).

Wishing you Blessings and Recovery,

The Fuller's

What Do I Know?

So today I ponder. What would my children's life be like if I had no hope? What would it be like if I believed all of the websites, doctors and research that said my children will always be like they were and will never recover? I shudder to think about that but sometimes I see something that makes me think about just that very concept.

Today, in my Internet search for something else I happened upon the show "The Talk" and I wanted to see if Holly Robinson Peete was still one of the hosts, and unfortunately she's no longer on there because she was a great voice for Autism Awareness. Anyways going off track. So I end up on this quest to find out what some deem autism to be and what they think the prognosis is.

So I go to the HollyRod website first (because she fueled my journey for today) and I click on the Autism tab, and this is the definition that is given: "Autism is a lifelong, complex neurobiologial disorder for which there is currently no documented cure. It crosses a spectrum that ranges from relatively mild difficulties to extreme conditions involving severe language delay; repetitive and/or anti-social behavior, and even aggressive and/or self-injurious behavior. Symptoms of autism change across the life course. An autism diagnosis involves deficits in three core areas: social interaction, use of language, and behavior and interests. Researchers are scrambling to determine whether autism is linked to genetics, environment factors or a combination of both."

Next I go to Autism Speaks and their definition is: "Autism is a general term used to describe a group of complex developmental brain disorders known as Pervasive Developmental Disorders(PDD). The other pervasive developmental disorders are PDD-NOS (Pervasive Developmental Disorder- Not Otherwise Specified), Asperger Syndrome, Rett Syndrome, Rett Syndrome and Childhood Disintegrative Disorder. Many parents and professionals refer to this group as Autism Spectrum Disorders."

Finally, I went to the Autism Society of America and their definition is: "Autism is a complex developmental disability that typically appears during the first three years of life and affects a person's ability to communicate and interact with others. Autism is defined by a certain set of behaviors and is a "spectrum disorder" that affects individuals differently and to varying degrees. There is no known single cause for autism, but increased awareness and funding can help families today."

Now in saying all of that I say this, in a round about way they all give the same definition for autism, and they all really won't comment on what they think the causes are and they all say that there is no "known" cure. Now in saying that when you go onto each website and read further they do say that that there are treatments that will make life easier and that often times no one treatment will help that some children will require multiple treatments.

Both ASA and Autism Speaks give great information about the different types of treatments, biomedical and otherwise. Autism Speaks specifically gives out a great packet of information called The 100 Day Kit, and it helps parents navigate the first 100 days after the initial diagnosis. The HollyRod Foundation mainly offer support and assistance in the Greater Los Angeles area.

All of the above are great resources if you are just starting out on your Autism Journey, if you have been in the game for any length of time then the above sites will just frustrate you because it is often things that you have already know. But they are great starting points. At some point in your journey you're going to have to go behind, speech, occupational, and physical therapy. At some point you're going to have to push the envelope beyond what you feel comfortable with and do treatments that don't fit into the box of conventional medicine. That's if you want to do what the medical community considers impossible.....recover. Our kids can be recovered, it will get better if you don't give up hope.

Wishing you Blessing and Recovery,

The Fuller's

October 11, 2011

Today was a great day for the kids. We are out of our NADH (I ordered over the weekend and forgot that Monday was a holiday) hopefully we'll be back in stock on Wednesday at the latest. But all other supplements were taken.

• Acetyl L Carnitine
• Omega 369
• Cod Liver Oil
• Zeolyte
• Kombucha
• Esstenta Water

I have ordered more acetyl l carnitine, NADH and a new item Himalayan salt. I will be ordering my Divine Child drink on Thursday.

OK, back to the kids. Both kids had a great day, Marcus' teacher again commented on how super focused that he was and that Jai Lynn had started her MI Access test and was doing pretty well. Upon getting the kids home, I gave them both about an hour to wind down then I started with Jai Lynn first on her homework. We worked on multiplication, page 2 of her spelling packet and Time for Kids booklet. First the TFK booklet requires a lot of reading and comprehension and she did fairly well with reading and recall, although it was a bit frustrating to her because the first story included many words that she was unfamiliar with. The first story was about Palestine wanting be become independent (or something like that) and that is a story that I think any kid would have trouble with. It was quite difficult. The other story was easier but by that point she was already a bit frustrated with the entire TFK process and said "We'll do more next week" lol I told her no we have to finish the packet more tomorrow. Next we went to the second page of her spelling packet which is contractions. It took her to the fourth one to get the direction (it could've been the way I was explaining it) but once she took over she completed it on her own with very little direction. The final piece that we did were multiplication flash cards and she did ok, she is trying her best to make the transition from addition to multiplication (which is difficult for the "typically" developing child) we did 0, 1, 2, 3 (not the entire number chart, I picked and choose various ones). Jai Lynn overall did very well with her homework this evening very proud.

Marcus Jr, tonight worked on his personal information and he remembered to write his entire name and remember the numerical portion of his address, he needed assistance remembering the street name, and city and almost got the state on his own. We next worked on math skills on addition and subtraction and he did quite well (will have pictures up by this weekend). Next we worked his spelling list from his second grade class and I just had him copy the words onto another sheet of paper and as he wrote them he spelled the word out which was great, not sure if that is a skill he obtained from school, me or the tutor or a combination of the three. But it was great to watch him be engaged in his homework and not just blindly copy. The last piece that we did tonight was reading, I had him log the book into his reading journal and write his name on the sheet. After that he was done, Marcus, Jr did a great job with his homework this evening. He did a great job overall. Whatever was going on yesterday was gone today.

The only thing weird today was his stool, it was almost diarrhea like but he wasn't upset, not sure if it was something he ate(food wise) or something non food that he placed in his mouth. We still have issues with him mouthing non-food items, although not as bad as it was it is still unnerving to say the least. So just monitoring him and watching to see what happens next.

Watching and waiting to see what tomorrow brings. Whatever it brings I feel thankful thus far for the progress that we've seen.

Wishing you Blessings and Recovery,

The Fuller's

October 10, 2011

This morning the kids got up to the normal routine. They got dressed relavitely quickly, ate breakfast and went on their way. Marcus, Jr was a little whiny and out of sorts but he was overall compliant. The supplements taken today were

• NADH
• Acetyl L Carnitine
• Zeolyte
• Omega 369
• Cod Liver Oil
• Vitamin D3

When Marcus Jr got home from school he was still a bit whiny but he was over all compliant and willing to do what was asked of him. His teacher said that although he was pretty focused he was still out of sorts. When he got home homework time was ok, his handwriting was off because he was not paying attention to the formation of letters and just going through the motions. He did a lot of singing and looking around while doing his homework, it took me a lot to refocus him to just the little bit that I needed him to do.

Jai Lynn did very well with her homework, she was able to take her work into her bedroom and complete the first sheet and last sheet on her own without prompting.

The kids did great at bedtime.

Wishing you Blessings and Recovery

The Fuller's

*haven't had the time to upload new video and pictures hope to have them up by this weekend*

October 9,2011

Sunday was a great day for the kids. Both had their clay baths and activated charcoal. The other supplements for today where:

• NADH
• Acetyl L Carnitine
• Omega 369
• Cod Liver Oil
• LL Magnetic Clay
• Activated Charcoal
• Kombucha
• Probiotics

Today was very laid back, lots of playing and getting ready for Grandma's and Grandpa's. Jai Lynn had her hair washed and braided today and everyone got their things ready to wear for the week.

We went over to my mom and dad's house and both kids had a blast running out in her yard and all throughout her house. They got ready for bed over there and we just came straight home and to sleep they went.

So again not much to report today, as it was very laid back for all. What I can say is everyone was compliant, mentally present, and interacted well at my parents house. Marcus tended to be in his own world a little at times but when you did command his attention he did attend. And a first both kids actually ate the dinner that was set out for them and not just a lot of aimless running around. Jai Lynn went up into my parents room and cut the television on to watch her show herself and retreated there and Marcus did puzzles and colored. Both shared the computer.

Hope your Sunday was well and Blessed.

Wishing you Blessings and Recovery,

The Fuller's

October 7, 2011

Today was a great day for the kids. Both got up in great moods and got dressed without me having to beg, yell and plead for them to do so. Jai Lynn made her own cereal and Marcus Jr waited patiently on his breakfast to be made. The kids actually got up at 6 am this morning and went to bed at 9 pm and where both still very energetic!

The supplements taken today where:

• NADH
• Acetyl L Carnatine
• Vitamin D3
• Omega 369
• Cod Liver Oil
• Zeolyte
• Folic Acid

Today Marcus' teacher noted that he was quite focused and did a great job today. Need to start getting daily reports on Jai Lynn other than she did great because that is not telling me anything.

When I went to get Marcus, Jr from school I had snacks in the car, So I asked him did he want snacks and he said yes then I asked him how was his day at school and he said fine! Normally he says "teacher" when you ask him about school.

Tonight we went to Outbacks and Jai Lynn did something that she had never done before. The waitress was taking orders and when she got to Jai Lynn, Jai lynn said I want Macaroni and Cheese, and the waitress asked her what do you want to drink and gave Jai Lynn several options for lemonade and Jai Lynn stopped for a minute and thought and gave her choice. And that had never happened before! She took complete control over what she wanted to eat. We where so proud of her.

Marcus Jr sat at the table and actually did the games inside the children's menus! He did sing throughout dinner but it wasn't loud or again just very conversational.

No homework today just a fun night with the family, the kids are making great strides. This is going to be a weekend of clay baths and detoxing . Will post more later.

Wishing you Blessings and Recovery,

The Fuller's

October 5, 2011

So today the kids woke up ready to take on the world. I asked Marcus, Jr was he ready to go back to school this morning and he told me "yes". So started them off with their NADH and we went on our way with our morning routine. The supplements that we had today were:

• NADH
• Acetyl L Carnitine
• Zeolyte
• Keifer
• Omega 369
• Cod Liver Oil
• Folic Acid
• Vitamin D3

Both kids got ready relatively quickly with no setbacks. When I dropped Marcus, Jr. off at school, I went to talk to his teacher and just be an overall "smother" He then gently pushed me out of the room and said "bye mommy" I was so proud of him.

Jai Lynn had a dental appointment that morning and she did very well with that. No major tears and no major drama. We went to Barnes and Noble and chose a book and then we went for breakfast then off to school.

Both kids had a great day, Marcus' teacher commented on how focused he was today and how ready to work that he was.

Tonight was tutoring and Jai Lynn did great stayed pretty well focused and got her assignments done. She really needs help with the memory thing as it is a hardship for her. Marcus, Jr completed his assignments needing occasional focus throughout but completing them just the same.

An overall good day for the kids, looking forward to many trials and triumphs in this journey.

Still waiting to hear if we received the ACT grant our fingers and toes are crossed.

Wishing you Blessings and Recovery,

The Fullers

*This was actually typed on 10.7.11, still trying to "catch up" after having Marcus, Jr home sick for 3 days*

October 4, 2011

Today started off to be a pretty good day. The kids actually woke up before me this morning, my husband said that Marcus Jr has been up extra early the past few days. Both kids took their supplements this morning and they were:

NADH

Acetyl L Carnitine

Omega 3-6-9 Jai Lynn

Cod Liver Oil Marcus

Folic Acid Marcus

Vitamin D3 2000 iu's Jai Lynn

Today I decided to keep Marcus, Jr home one last day as I wanted to monitor him and make sure that all was fine in seizure world. Today Marcus Jr worked again on his personal information some math and reading. We didn't do much school work today just some relaxing and playing. Again a great day that he did good behaviorally and academically.

Today Jai Lynn forgot her lunchbag again, when I asked her where it was her reply "I can't find it it's not there" I asked her had she looked in the lunch room and in the lost and found at the school and she said no. Jai Lynn has issues with episodic memory, short term memory and she gets frutrasted when the pieces don't always come together for her (as anyone would). But she bounces back pretty well.

She got home and completed more of her spelling packet and her TFK packet, spelling was easier, but the TFK was a bit difficult as the assignment required her to read and recall. But she did her best without getting frustrated.

Marcus Jr. worked on his spelling words and math a bit more.

Overall a good day.

Wishing you Blessings and Recovery,

The Fullers

*sorry for the short post but writing this two days later*

October 3, 2011

Hello all sorry for the delay. But the kids had a great day on Monday. I decided to keep Marcus, Jr at home again just to check for any seizure activity and he had none today. The supplements that we took on this day where:

NADH

Acetyl L Carnitne

Cod Liver Oil (Marcus, Jr)

Omega 369 (Jai Lynn)

Folic Acid(Marcus, Jr)

Zeolyte

Keifer

Vitamin D3 (Jai Lynn)

Now for those of you wondering why certain kids are taking certain supplements here's why. For the Omega 369 it is in pill form and Jai Lynn can take pills and Marcus Jr is just learning so she can take the pills and Marcus Jr takes the actual oil. If you are wondering why I'm not doing the hemp seed oil per the protocol, because we still have Omega 369 pills and Cod Liver Oil left so once that is all used up we will begin to use the hemp seed oil. Now the Vitamin D3 is in pill form also (my liquid Vitamn D3 has mysteriously disappeared) so Jai Lynn takes 2000

iu's per day. The folic acid is in pill form also but it is small so I get Marcus, Jr to take that just like his NADH pill.

Now back to business, while Marcus, Jr was home today I did quite a bit of work with him. We worked on his personal information (ie name, address, city, state) did some math pages, and some English and language arts. And when he was able to focus he did quite well. We did a lot of refocusing as he worked and verbal prompting to get him to attend to the work

That above is his spelling list.

On that day he also did some math and identifying the seasons. Overall a pretty good day academically. He also did very well with his behavior today.

Jai Lynn had a good day at school, she left her lunch bag at school (she hadn't bought it home since last Wednesday) and I had been asking her to bring it home since she left it and she always seemed to forget. Today had her go back into the school to retrieve her jacket that she had left on Friday.

Both kids had a great evening and completed their homework that evening, Jai Lynn continued work on her spelling packet and her Time for Kids packet and Marcus, Jr resumed work on his spelling and math.

Bed time was uneventful and both kids went to sleep without incident.

An overall good day.

Wishing you Blessings and Recovery,

The Fuller's