Tuesday, June 26, 2012

Weekly Update 6-26-2012

We have been doing pretty well in the land of us.  The kids are really taking to their school lessons, I'm making sure that we stay consistent during the summer so that their minds can stay active and flexible.  Even if all my children were "neuro-typical" (which they will one day be) I will do the same.  I don't believe that summer is the time to stop learning.  Learning is supposed to be a continuous process.  

They also keep the same schedules year around, although there is a bit more freedom in the summer not too much.  Here's why, summer vacation in the Michigan school district that we're in is roughly 81 days.  Because of my challenges and the challenges of my children it is not worth it to me to break a schedule because of the amount of time and energy it would take for me to get them back where they need to be.  Plus, in real life you don't get a summer vacation, not even if you're a teacher because many of them have to take on summer jobs like college students to supplement. So this is also a life lesson. 

So this weekend I made a discovery that proves my consistent point even further. My oldest son has pica, he eats non-food items. Now my husband and I noticed a trend, the problem gets worse on the weekend or when he is extremely bored or has a lot of unstructured time.  So this past weekend we caught him eating quite a few non-food items mainly rubber.  This has been going on for a while, my  husband said that he noticed it getting better with the Neuro-Feedback (I just noticed the seizures) but this surge in eating non-food items could also explain many of his stomach issues. I don't know why I never thought of this piece before.  

So we have decreased tv time again (we cut off our cable television service and have Netflix and Hulu it allows us to better control what our children are watching.), we constantly make sure that he doesn't have non-food items in his mouth, and try to reinforce that we only eat food.  It's going to be a long road but we'll make it.  

School work wise he is doing pretty good, working on his focus and attention to detail. Making him write slowly and neatly is a challenge but his working on it with some resistance. We are also working on his already strong math skills, reading recall, building on reading comprehension, money and time.  He got a summer bridge book from school and his teacher Ms. Wentz was wonderful to print a lot of work with for us to help us stay on his goals.  We have also started the SAS music therapy again to hopefully help with his focus and to perhaps help his mind with that sensory piece to help out with that pica. He has also started the chore of taking out the trash. There have been no seizures over the past week, nor have their been any seizure like preludes such as, bad gas, screaming, loopiness. He is eating less gluten (we're not entirely gluten free), we have decreased computer and television time, we are doing Dr. Goldberg's eating protocol by removing things with dies, or the color red. He takes aloe vera juice, lots of probiotics (by way of keifer and acidophilus) activated charcoal and Methyl B-12 tabs.

Jai Lynn is doing great this summer, helping in the kitchen and around the house, learning how to use a dictionary and look up definitions thus learning the meaning of words.  She is working hard on math. This week I have her adding multiple digits, we are working on the parts of speech, reading recall and comprehension and money.  Ms. Wentz also gave her a great packet of work along with a Summer Bridge Book and a Testing booklet to get her used to testing since she will be entering the 6th grade this fall.    She has also begun the SAS music therapy again, I have her listen while praticing her typing skills ( think I will have her brother do the same almost like neuro-feedback)

Mason is working on counting to 10, colors and the alphabet.  We are working on coloring on paper and not on the table or anything else that will stand still.  

The all have a chore, once they get comfortable performing that chore on a regular basis I will tie money into it (the life skill of getting paid for completing a job) but for now we are having fun learning.  

Well that is it for now.

Until Next Time,
Blessings and Recovery,
The Fuller's

Wednesday, June 20, 2012

"Houston we have a Problem"

So the school year is over and my kiddos are home with me. On the last day of school I said to my kids A.I. aide (Autiscally Impaired), "you all must be said that Jai is leaving being she was the only girl and since girls aren't that prevalent on the spectrum who knows when you'll get another one" The answer she gave me almost made me drop to my knees. She said, "oh we're getting TWO little girls in next fall" I thought to myself WTH is going on??!!! When my daughter was diagnosed with  PDD- NOS back in 2003 hearing about a girl on the spectrum was rare to say the least. Jai has always been the only girl. Girls on the spectrum are like an anomolay.

If this doesn't prove that something more is going on other than "autism" I don't know what will do it for you. This is not text book autism that we're messing with people this is something more sinister. If the medical profession would open their eyes and see maybe more children would be functioning versus being zombies. Maybe that's what they want is a generation of zombies, kids hopped up on pharmaceutical, mind altering drugs. Maybe that's what these organizations want, they claim they are all for finding a cure but there is a cure right in their face. Several bold doctors have already paved the way, why aren't they mowing out the rest of the path? It makes one wonder, are they afraid of the money that they will lose out on if this is not truly autism (and trust me people for many of these kids it's not)? What interests me is that many of these organizations only tout speech, occupational and physical therapy as your main line of defense.

Here's my other issue how does a disorder go from affecting 1 and 10,000 to 1 and 88, damn that's a problem. This is not genetic or developmental this is viral. I used to think, wow because my kids had it and other children in my family had it that it must be genetic in some way. Now I know how untrue that is.

Hearing what I have heard has truly disturbed me, I can't be quiet or sit still. I can't wait really now because I have a feeling that everyone is waiting to see what my children do. So the summer is not a time of rest for us. I will continue to update with progress and changes.

Until Next Time,
Blessings and Recovery
The Fuller's

Saturday, June 9, 2012

Weekend Fun 6-3-12

This Sunday Marcus, Jr went bowling with dad and they had a great time.  Dad mentioned how well Marcus, Jr did for the first two games but got bored by the third. All in all they both had a great time together. My husband because of his schedule rarely gets one on one time with the kids, and Marcus, Jr loved the time away although he's not very verbal, I believe that he enjoyed getting out of the house and doing something just with dad.

The boys plan on having some bowling fun later. I can't wait to see what this activities and others do for Marcus, Jr, and how they help him.

Until Next Time,
Blessings and Recovery
The Fuller's